In addition to seeing your primary care doctor/pediatrician and any number of specialists to address your child’s acute medical needs, you may also find that it’s beneficial to employ therapy-related services to help your child improve their skills and, therefore, their quality of life.
Physical therapy (PT) helps to improve the quality of movement, decrease or relieve pain, and help a patient achieve better health and quality of life. It is a non-invasive treatment that impacts physical function. For our patients, PT usually involves working on core strength, balance, sitting, crawling, walking, climbing, jumping, etc. Having a good PT will also be helpful for obtaining equipment our children need. This may include an adaptive transport stroller, wheelchair, stander, or gait trainer, as they can inform your decision and provide information regarding medical necessity
Occupational therapy (OT) helps individuals develop fine motor, visual motor, and sensory motor skills through the therapeutic use of daily activities (occupations). For our children, this means helping our children participate in school and social situations by improving their functional ability to perform daily activities by adapting the environment and/or task to the individual. Daily activities may include feeding, dressing, toileting, writing, etc.
Speech and Language Therapy
A Speech and Language pathologist (SLP) helps identify how an individual is best able to communicate effectively by evaluating their verbal and nonverbal skills. This could be through object identification, picture identification, sign language, voice output switches, eye gaze, or with speech generating devices that help an individual achieve maximum communication. Many speech therapists also provide feeding therapy.
Hippotherapy is an approach to physical, occupational and speech therapy that is enhanced by the physical gait of the horse to to improve neurological and physical functioning of the patient by providing sensory and motor input.
Aquatic therapy is an alternative to more traditional land therapy allowing the child to move their body more freely while relaxing their muscles. . Some of the benefits of aquatic therapy include: improved strength, improved range of motion, improved postural support, and improved aerobic strength. Many of our kids love the water so this is a great alternative to traditional therapy that is fun.
Many of the individuals living with Ogden syndrome have ocular impairments (affecting the eye), and/or cortical/cerebral visual impairment (CVI ) which impacts the visual pathways and visual processing centers of the brain. Vision services are provided by a Teacher of Students with Visual Impairments (TVI) who provide assessments, direct and consultative services to ensure visual accessibility from birth-21 years.
Intensive therapy is a neurological and rehabilitative approach to physical, occupational, and speech therapy specific to the needs of the individual and family goals. Many children make more progress towards their goals than they might in a longer span of traditional therapy.